Lucy Beall was born with epidermolysis bullosa, a rare genetic disorder that affects roughly 200 people in the U.S. each year and causes painful blisters at the slightest touch. Expected to die at ...

CROSBY TOWNSHIP, Ohio (WKRC) – A local man is putting his pedaling skills to work for a good cause. He’s biking for the rare disease epidermolysis bullosa, or EB. He is the great uncle to two young ...

When Emma Fogarty was born, doctors noticed something unusual. The infant had no skin on her left foot or right arm. Worried, doctors sent her to Ireland’s largest children’s hospital to understand ...

VANCOUVER, British Columbia, Oct. 26, 2022 (GLOBE NEWSWIRE) -- InMed Pharmaceuticals Inc. (IMLFF) (“InMed” or the “Company”) (Nasdaq: INM), a leader in the research, development and manufacturing of ...

National charity DEBRA, which offers specialist care to those suffering from Epidermolysis Bullosa (EB), has unveiled a hard-hitting Facebook app with Publicis London to help raise awareness of the ...

The week is to raise awareness of epidermolysis bullosa (EB), a rare genetic skin condition sometimes described as ‘butterfly skin’. It comes three years after local child, Louis Moffitt, was ...

Please provide your email address to receive an email when new articles are posted on . BPM31510T previously received orphan drug designation. Phase 2/ 3 trials are expected to commence in 2025. The ...

KANSAS CITY, Mo. — T-shirts are being made after thousands of people attended a parade for a boy with a rare genetic disorder. A 3-year-old boy, Tucker Langord, was born with a rare genetic disorder ...

Lucy Beall is a model and advocate who brings awareness to the rare condition epidermolysis bullosa Lucy Beall was born with epidermolysis bullosa, a rare genetic disorder that affects roughly 200 ...